helpful links

Here you will find links to charities and organisations that have been helpful. If you have would like to share any useful links, please email us [email protected]

Family Fund offer grants for a large range of goods to benefit disabled children and their families
Contact exist to help families feel valued, supported, confident and informed
Reuben’s Retreat support families from across the UK through a range of services
Newlife offer care services, a free helpline, equipment grants, emergency equipment loans & play therapy pods
Aicardi-Goutières Syndrome Americas Association
Cerebra offer a sleep advice service, toy & book library, legal rights service and parental guides
Genetic Disorders UK offer a genetic counsellor led helpline
Thames Valley Adventure Playground provide fun and freedom in a stimulating, challenging and safe environment
Caudwell Children offer a family support service and equipment grants